Biggest Disappointment EVER

So, it's been a while since we've posted. We were hoping our next post would be of Kellan in his bed at home. On Saturday the doctor thought Kellan was doing well enough to room in on Sunday night, meaning Ty and I would take care of him in a room on our own. If he did well Sunday night, then he could be discharged Monday. We checked into a room in the hospital Saturday night, planning to room in Sunday. Then it all started falling apart. At 1:30 Sunday morning, Kellan wouldn't take his bottle. They stopped and tube fed the rest. Sunday morning Kellan acted fussy like he was in pain. As the day went on this got worse and worse. He required oxygen again. He screamed after each feeding. He was refluxing. Finally, they started him on Zantac. The medication takes several doses before it is really effective. Kellan is still refluxing after some feedings. It is so hard to watch your child hurt and not be able to fix it. Today we are having tests run to see how bad the reflux is. We keep hoping that once this gets figured out he won't need oxygen. With this huge setback it looks unlikely that Kellan will be home for Christmas. We are so disappointed. We want him to be well, but we know that he will do much better at home.